Family spokeswoman: British baby Charlie Gard has died - Spokane, North Idaho News & Weather KHQ.com

Family spokeswoman: British baby Charlie Gard has died

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LONDON -


    

THE LATEST: 

The Latest on the death of British baby Charlie Gard (all times local):
    
8:05 p.m.
    
Great Ormond Street Hospital in London has expressed its condolences after the death of Charlie Gard, the terminally ill child who died on week short of his first birthday.
    
The hospital, which had been at the center of a legal battle with the child's parents, issued a statement late Friday following news of the child's death.
    
The hospital said "everyone at Great Ormond Street Hospital sends their heartfelt condolences to Charlie's parents and loved ones at this very sad time."
    
Charlie suffered from a rare genetic disease, mitochondrial depletion syndrome, which left him brain damaged and unable to move his limbs or breathe unaided.
    
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6:35 p.m.
    
Medical ethicist Arthur Caplan said the Charlie Gard case shows how the medical profession is struggling to adjust to the age of social media, which puts the general public in the middle of decisions that in the past would have been private issues for doctors and the family.
    
Caplan, of New York University's Langone Medical Center says "I do think that in an era of social media, it is possible to rally huge numbers of people to your cause ... the medical ethics have not caught up."
    
The heated commentary prompted Judge Francis to criticize the effects of social media and those "who know almost nothing about this case but who feel entitled to express opinions."
    
Great Ormond Street Hospital in London, Britain's premier children's hospital, reported that its doctors and nurses were receiving serious threats over Charlie's case. London police are investigating.
    
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6:35 p.m.
    
Under British law, it is common for courts to intervene when parents and doctors disagree on the treatment of a child. In such cases, the rights of the child take primacy over the parents' right to decide what's best for their offspring. The principle applies even in cases where parents have an alternative point of view, such as when religious beliefs prohibit blood transfusions.
    
Charlie Gard's case made it all the way to Britain's Supreme Court as Charlie's parents refused to accept decisions by a series of judges who backed Great Ormond Street. But the Supreme Court agreed with the lower courts, saying it was in Charlie's best interests that he be allowed to die.
    
The case caught the attention of Donald Trump and Pope Francis after the European Court of Human Rights refused to intervene. The two leaders sent tweets of support for Charlie and his parents, triggering a surge of grassroots action, including a number of U.S. right-to-life activists who flew to London to support Charlie's parents.
    
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6:35 p.m.
    
Charlie Gard's parents raised more than 1.3 million pounds ($1.7 million) to take him to the United States for an experimental medical therapy they believed could prolong his life. But Charlie's doctors at Great Ormond Street Hospital in London objected, saying the treatment wouldn't help and might cause him to suffer.
    
The dispute ended up in court.
    
Charlie's case became a flashpoint for debates on the rights of both children and parents, on health-care funding, medical interventions, the responsibilities of hospitals and medical workers and the role of the state.
    
After months of legal battles, High Court judge Nicholas Francis ruled Thursday that Charlie should be transferred to a hospice and taken off life support after his parents and the hospital failed to agree on an end-of-life care plan for the infant.
    
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6:35 p.m.
    
Charlie Gard, the terminally ill British baby at the center of a legal and ethical battle that attracted the attention of Pope Francis and U.S. President Donald Trump has died. He was one week shy of his first birthday.
    
Charlie suffered from a rare genetic disease, mitochondrial depletion syndrome, which left him brain damaged and unable to move his limbs or breathe unaided.
    
A family spokeswoman, Alison Smith-Squire, confirmed Charlie's death on Friday, a day after a judge ordered he be taken to a hospice for his final hours.
    
His mother Connie Yates said in a statement "our beautiful little boy has gone, we're so proud of him."


___

Charlie Gard, the critically ill British baby at the center of a legal battle that attracted the attention of Pope Francis and U.S. President Donald Trump, has died. He would have turned 1 next week.
    
Charlie suffered from a rare genetic disease, mitochondrial depletion syndrome, that caused brain damage and left him unable to breathe unaided.
    
His parents fought for the right to take him to the U.S. for an experimental therapy they believed could prolong his life. But Charlie's doctors at Great Ormond Street Hospital objected, saying the treatment wouldn't help and might cause him to suffer. The dispute ended up in court.
    
A judge ruled Thursday that Charlie should be transferred to a hospice and taken off life support after his parents and the hospital that had been treating him failed to agree on an end-of-life plan.

(Copyright 2017 The Associated Press. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.)

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