Coeur d'Alene family hopes for service dog for daughter's extrem - Spokane, North Idaho News & Weather KHQ.com

Coeur d'Alene family hopes for service dog for daughter's extremely rare disorder

Posted: Updated:
COEUR D'ALENE, Idaho -

11-year old Summer Sembar lives life without any qualms, without any worry.

Her mom, Heather Fleek, says everyday is Halloween for the vibrant fifth-grader.

“She loves to dress up in costumes,” Fleek said.

But it was this time last year when Summer’s seizures started to appear.

“We had no idea what was going on because they aren't typical, they are a-typical so with her grand mals she stays conscious,” Fleek said.

That’s because Summer has Ring-20 Chromosome Syndrome.

A disorder different from Epilepsy.

Fleek says the disorder also causes Summer’s cognitive functions, like walking and talking, to deteriorate over time.

“Last year at this time I thought she was dying,” Fleek said, “we were at Seattle Children's Hospital they put her in a coma to try to stop the seizures and she kept seizing.”

The disorder is extremely rare.

“I think she was either the 5th or 6th one in the United States that has it and there's 70 something worldwide that have had it,” she said.

Fleek says her seizures only last a few minutes, but normally happen a few times every hour.

Now Summer’s family is hoping they can get a service dog to comfort her during her seizures.

At the end of the month, two of Heather’s friends are having a fundraiser to help pay for one.

“I notice when she's around dogs and she's having her grand mals they are not as bad, she doesn't convulse as hard, she doesn't scream as loud, she is comforted by them,” Fleek said.

The fundraiser will be held October 26th, 2017, from 4:30p.m. – 6:30p.m. at the Bestland Senior Living Center in Coeur d’Alene.

For more information, please call 208-665-1600.

  • Most Popular StoriesMost Popular StoriesMore>>

  • Spokane chef gets stolen car, knife back

    Spokane chef gets stolen car, knife back

    Saturday, October 21 2017 12:25 AM EDT2017-10-21 04:25:18 GMT

    SPOKANE, Wash. - It's been a tough week for Keegan Jones. Last Friday his Mazda Protege was stolen. Leaving him depending on friends to help get to work. Not only was his car stolen, but something else he relies on for his livelihood.

    >>

    SPOKANE, Wash. - It's been a tough week for Keegan Jones. Last Friday his Mazda Protege was stolen. Leaving him depending on friends to help get to work. Not only was his car stolen, but something else he relies on for his livelihood.

    >>
  • Spokane police investigating body found in dumpster

    Spokane police investigating body found in dumpster

    Friday, October 20 2017 6:54 PM EDT2017-10-20 22:54:15 GMT

    SPOKANE, Wash. - Spokane Police say they are investigating an unattended death after they responded to a report of a deceased woman found in a dumpster of a business in the 2900 block of E. 27th Ave. Friday morning. Spokane Police Officers and Major Crimes Unit (MCU) Detectives responded to the scene for the investigation around 9:30 a.m.

    >>

    SPOKANE, Wash. - Spokane Police say they are investigating an unattended death after they responded to a report of a deceased woman found in a dumpster of a business in the 2900 block of E. 27th Ave. Friday morning. Spokane Police Officers and Major Crimes Unit (MCU) Detectives responded to the scene for the investigation around 9:30 a.m.

    >>
  • Otis Orchards man dies after driving off Highway 95 near Coeur d'Alene

    Otis Orchards man dies after driving off Highway 95 near Coeur d'Alene

    Saturday, October 21 2017 12:29 PM EDT2017-10-21 16:29:18 GMT

    COEUR D'ALENE, Idaho - Idaho State Police say a 68-year-old man has died after leaving the roadway on Highway 95 south of Coeur d'Alene early Saturday morning. Investigators say the crash happened just before 1:30 a.m. A blue 2005 Chevrolet Silverado truck driven by Frank M. Reeves of Otis Orchards was headed north on Highway 95 when he left the roadway for an unknown reason.

    >>

    COEUR D'ALENE, Idaho - Idaho State Police say a 68-year-old man has died after leaving the roadway on Highway 95 south of Coeur d'Alene early Saturday morning. Investigators say the crash happened just before 1:30 a.m. A blue 2005 Chevrolet Silverado truck driven by Frank M. Reeves of Otis Orchards was headed north on Highway 95 when he left the roadway for an unknown reason.

    >>
HD DOPPLER 6i
/
  • Top Stories from KHQHomeMore>>

  • Trump plans to help with Russia legal bills

    Trump plans to help with Russia legal bills

    Saturday, October 21 2017 5:57 PM EDT2017-10-21 21:57:45 GMT

    WASHINGTON (AP) - President Donald Trump intends to spend at least $430,000 of his own money to help pay the legal bills of White House staff and campaign aides related to the investigations into Russian election meddling in the 2016 election. A White House official confirmed the plan, which was first reported by the website Axios.

    >>

    WASHINGTON (AP) - President Donald Trump intends to spend at least $430,000 of his own money to help pay the legal bills of White House staff and campaign aides related to the investigations into Russian election meddling in the 2016 election. A White House official confirmed the plan, which was first reported by the website Axios.

    >>
  • Idaho woman arrested following death of 20-month-old child

    Idaho woman arrested following death of 20-month-old child

    Saturday, October 21 2017 5:27 PM EDT2017-10-21 21:27:17 GMT

    TWIN FALLS, Idaho (AP) - Police have arrested a south-central Idaho woman following the death of her 20-month-old child. Authorities arrested 22-year-old Amanda Dunlap of Twin Falls in Boise on Friday and booked her into the Ada County Jail.

    >>

    TWIN FALLS, Idaho (AP) - Police have arrested a south-central Idaho woman following the death of her 20-month-old child. Authorities arrested 22-year-old Amanda Dunlap of Twin Falls in Boise on Friday and booked her into the Ada County Jail.

    >>
  • Trump has no plan to block scheduled release of JFK records

    Trump has no plan to block scheduled release of JFK records

    Saturday, October 21 2017 3:43 PM EDT2017-10-21 19:43:39 GMT

    WASHINGTON (AP) - President Donald Trump says he doesn't plan to block the scheduled release of thousands of never publicly seen government documents related to President John F. Kennedy's assassination. Trump says in a tweet that "Subject to the receipt of further information, I will be allowing, as President, the long blocked and classified JFK FILES to be opened."

    >>

    WASHINGTON (AP) - President Donald Trump says he doesn't plan to block the scheduled release of thousands of never publicly seen government documents related to President John F. Kennedy's assassination. Trump says in a tweet that "Subject to the receipt of further information, I will be allowing, as President, the long blocked and classified JFK FILES to be opened."

    >>